About Our Editing

The Nanbyo Support Network Hokkaido started in 2007.
The main object is to edit “Patient Groups in Japan” which reflects the Japanese social welfare history through the patients’ advocacy movement.
Mr. Tateo Ito, the main editor of this project said that “The traumatic outcry for help from the Nanbyo patients moved the mass media and society at large, leading to an overhaul of the Japanese social welfare system.”
The purpose of editing is not only to look back on the historical accounts and documentation relating to social welfare, but also to acknowledge the contributions that solidified the network of patients, constitutional right to live edict. Our aim is to empower suffering patients and improve their overall quality of life.
Although, I cannot speak from experience as a sufferer of an intractable disease and am older than most I am however motivated and committed to supporting this important project indirectly. I also hope to enable the next generation to be capable and strong.
Thank you for your cooperation.

April 5, 2008

Patient Groups in Japan
Chief Editor Mitsuko Kojima


日本の患者会編纂委員会委員長 児島 美都子

地域にむすぶ高齢者の医療と福祉 出版社: ミネルヴァ書房 / 障害をもつということ
出版社: 一橋出版 / 社会福祉の法律入門 出版社: 有斐閣; 第3版版 / 新 医療ソーシャル
ワーカー論—その制度的確立をもとめて 出版社: ミネルヴァ書房など


伊藤 たてお

特定非営利活動法人難病支援ネット・ジャパン 代表
元 財団法人北海道難病連 代表理事
元 一般社団法人日本難病・疾病団体協議会(JPA) 代表理事

永森 志織

特定非営利活動法人難病支援ネット・ジャパン 理事
日本の患者会WEB版 事務局
全国難病センター研究会 事務局
元 財団法人北海道難病連 相談室