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This project was started in 2007.
It is being produced by the Japan Patients Association (JPA) and “NANBYO” Support Network Hokkaido.
In 2013, it became a target project for subsidies from the Ministry of Health, Labour and Welfare.
It is being implemented as a support project for the patients with intractable diseases, called the “Patient Groups in Japan Information Collection Project”.
It is our goal to pass on the records of the patients with intractable diseases and their families to future generations.
The “Chronological Table” section summarizes the activities carried out by Patient Groups and the society.
The “Interviews” section collects interviews with the leaders from the times at which Patient Groups were established.
Movie of Patient Groups in Japan
[Editor ／ NPO 'NANBYO' Support Net Hokkaido]
〒064-0927 北海道札幌市中央区南27条西8丁目 1-28
TEL 011-532-2360 FAX 011-511-8935
[Japan Patients Association (JPA)]
〒170-0002 東京都豊島区巣鴨1-11-2 巣鴨陽光ハイツ604号
TEL 03-6902-2083 FAX 03-6902-2084
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